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3rd International Conference on Advanced Clinical Research and Clinical Trials

Dublin, Ireland

David A Pearce

David A Pearce

Sanford Research, USA


David A Pearce heads the leading lab in Juvenile Neuronal Ceroid Lipofuscinosis (Batten disease) research at Sanford Health. He has been researching Batten disease since 1997. His research has led to the first clinical trial for Juvenile Batten disease and has published over 100 research papers. He also oversees a national registry for rare diseases known as the Coordination of Rare Diseases at Sanford (CoRDS). He has organized rare disease workshops for the National Institute for Neurological Disorders and stroke arm of the National Institutes of Health and is currently a member of the executive committee for the International Rare Diseases Research Consortium (IRDiRC). In his role as President of Research at Sanford, he is responsible for overseeing the development of research programs across Sanford’s nine-state footprint, including more than 250 researchers, eight research centers and more than 300 ongoing clinical trials


Abstract : Need for patient registries for rare disease clinical trials and how to integrate them into the electronic medical record